Fairness in Depictions of Disability

Case Study: Don Bosco Mission Bonn

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14-years-old A.A.R.N lies in her parents' bed with her father Alejandro Ramirez. One of her favorite plans in the evenings and in the mornings during the weekend, is to watch TV with her father in bed.

©Tamara Merino/ Don Bosco Mission/ Fairpicture

Brief

The Escuela Laura Vicuña is a school for children and teenagers with disabilities that is supported by the Don Bosco Mission. Fairpicture was approached to find freelancers who could portray the everyday life of two students at school and with their families in a way that fairness in representation. The images were to be used primarily for a Don Bosco fundraising letter, encouraging the viewer to give a donation supporting projects like the school. 

Client

Don Bosco Mission

Visual Creator

Tamara Merino

Theme

Children with Disabilities

Locations

Chile, Los Lagos

Date

October 2021

chile

For people from populations who are systemically mistreated and misrepresented, informed consent is essential.

14-years-old A.A.R.N hugs her stuffed bear inside her room. A.A.R.N has Down Syndrome and for the past two years she has been homeschooling through a program offered by the Laura Vicuña Special School every other week. A.A.R.N does not participate in face-to-face classes, because her parents' fear that she could get COVID-19. She doesn’t like to attend the online classes and her mother has a hard time convincing her to participate and attend the class. Her parents assure that next year A.A.R.N will return to school in person.

Fernanda (14, name changed) was only able to attend classes virtually for the first two years of the COVID-19 pandemic. With her Down’s Syndrome, her parents feared that she would contract with COVID-19 at school and that it would be dangerous. Fernanda wasn’t enjoying online classes and, at the point this image was taken, was looking forward to going back to physical school with her friends.

©Tamara Merino/ Don Bosco Mission/ Fairpicture

Images and Research for their Editors

Don Bosco required two photographic stories showing the school’s children with their therapists, teachers and parents. Additional text provided by the visual creator was to be the basis for the text prepared by the Don Bosco editors in Germany.

A.S.L, 15-years-old with moderate intellectual disability and cri du chat syndrome holds the hand of technician, Any Muñoz and C.A.L.O, 14-years-old with moderate intellectual disability and Down syndrome paints in his notebook during recess.

Juanita (14, name changed) paints in her notebook during break time. Her classmate Carlo (15, name changed) suffers from cri-du-chat syndrome. Holding Any Muñoz's hand gives him confidence.

©Tamara Merino/ Don Bosco Mission/ Fairpicture

Project Context

The children and teenagers who attend the Escuela Laura Vicuña primarily come from economically disadvantaged families and some have indigenous heritage. The school's goal is to support the children with the necessary therapies and education, so they can have more independence in adulthood. To facilitate this, the school works closely with companies to prepare the students for future work options.

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Thank you very much for sending us the photos. We are thrilled!

Kirsten Prestin, PR Officer, Don Bosco Mission Bonn

17 years-old J.F.V.T and his father Jose Villanueva, 39 years-old, hug each other inside their shared room in their home made of sheet metal and wood and sealed with egg cartons to insulate against the cold in Puerto Montt. J.F.V.T has intellectual disability and language disorder, as well as his father Jose, who has a moderate intellectual disability...J.F.V.T  attends the Laura Vicuña Special School every day. "J.F.V.T has learned to say a full sentence and to communicate in a more fluent and positive way. He now knows how to do crafts and socializes with other children," says his father proudly.

Tomás (17, name changed) lives with his father in a house made of corrugated iron and wood. They cannot heat the room they live in. The walls are poorly insulated with egg cartons.

©Tamara Merino/ Don Bosco Mission/ Fairpicture

Simple collaboration in a busy environment

For disabled people, their families and their support systems, it is not self-evident that they will be treated with respect in media. Having a production can also be incredibly stressful for a school, yet Don Bosco and the families involved found the collaboration with Tamara and Fairpicture to be simple and supportive. The images and stories were used for a fundraising campaign, as well as in the Don Bosco digital magazine. 

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